The need for culturally and linguistically focused education and training for Chinese American patients and caregivers is especially great. Poor care and wrong care often result from misunderstandings related to differences in language and culture. Chinese Americans continue to have the lowest rates of hospice use of any group. In focus groups, Chinese Americans reported they would have made different decisions if they had had more complete information at the time of a loved one’s death.
- Forming a CACCC Bereavement Support Group
- Extending our community outreach to include suicide prevention.
- Revising and conducting extended outreach on using the POLST form and the Advance Health Care Directive.
- Conducting our second annual Hospice and Palliative Care volunteer trainings in both Northern and Southern California
- Publishing the first book on the Chinese End of life Movement
WHAT IS THE CACCC?
The Chinese American Coalition for Compassionate Care, the only organization in the nation devoted to end-of-life concerns in the Chinese community, is an active working coalition of over 80 organizations and a total of almost 1300 individuals.
The CACCC was formed in December 2005 to address the lack of linguistically and culturally appropriate end-of-life information and training available to the Chinese community and those who serve it. The CACCC incorporated in 2007, and achieved 501c3 tax-exempt status in the same year. A Board of Directors - 15 dedicated volunteers - sets policy for the organization. It uses the facilities of its member organizations for trainings and meetings. The coalition’s focus is helping Chinese Americans with advance care planning, assisting with palliative care and pain management, providing respite and hospice volunteer training, targeting education for members of the Chinese-American community, and meeting the critical need of educating health care professionals who serve Chinese Americans.
American Cancer Society, California Chinese Unit
Asian Americans for Community Involvement
California Hospice and Palliative Care Association
Center for Healthcare Decisions
Children’s Hospice and Palliative Care Coalition
Coalition for Compassionate Care of California
Dharma Drum Mountain Buddhist Association
End-of-Life Nursing Education Consortium
Hospice By the Bay
Hospice Foundation of America
Hospice and Palliative Nurses Association Org.
Laguna Honda Hospice
Lance Armstrong Foundation
Light and Salt Association, Texas
National Hospice and Palliative Care
Pathways Hospice Care
Self Help for the Elderly
Stanford Geriatric Education Center
Tzu Chi Foundation Northwest Region
VITAS Hospice Services
Zen Hospice Project